Chapter Nine – Living Between Infusion - A Year of Trials and Triumphs – My Story

Even when home health shows up on time, every infusion is a gamble. My veins are not fragile veins but with their technique, or prolonged pressure often collapse, blow, or bruise, often times puncturing through the vein. Nurses miss again and again, leaving me battered before hydration even begins. Some have even brought children along, distracted while holding the needle, and I was the one who suffered.

At one point, they asked my caregiver if the nurses could simply place the IV and leave me for the caregiver to remove it later. Reluctantly my caregiver agreed, though uncomfortable. The implication was clear: either accept unsafe care or go without lifesaving fluids.

Every visit is a cliffhanger, will the nurse find the vein, run the fluids safely, and keep me from another ER trip? Or will I be left abandoned, body breaking down, and forced once again into the chaos of the hospital?

Written By

The Original "Girl In A bubble"